Private Websites
Frederik Egold: Juvenile NCL (German)
Clara Dyck, Late Infantile NCL (German)
International Links
NCL Mutation Database
Database containing all NCL gene mutations that have been identified so far
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Medical Centers
University Medical Center Hamburg, Department of Pediatrics, Germany
NCL-Net headquarter, complete NCL Diagnostics Facility, and NCL-Clinic
NCL-Organisations and Foundations
NCL Gruppe Deutschland e.V. (German)
German NCL Parents Organisation
NCL Stiftung (German)
Non-profit organisation to support NCL-research
Batten Disease and Research Association (BDSRA)
NCL Parents Organisation in USA and Canada
Batten Disease Family Association
A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and promoting awareness of, and research into, the disease
Private Websites
Frederik Egold: Juvenile NCL (German)
Clara Dyck, Late Infantile NCL (German)
Database containing all NCL gene mutations that have been identified so far