Organisation, Structure and Function


The NCL-Net is a network that combines several functions:

The main function is to provide a central medical information center for patients, physicians and hospitals with questions regarding diagnosis and treatment of NCL-patients. Constant contact persons for these question are the physicians in the NCL-Clinic of the University Medical Center Hamburg, Germany (see Contact).

Other important functions of the NCL-Net are the following:

- to support contact and exchange of information beween patients, medical doctors, and scientists

- to inform patients and medical doctors about ongoing clinical and basic research projects

- to assign patients to research studies if they are interested

The overall aim of the NCL-Net is to support NCL-research in order to help develop treatment options for these diseases which today are still beyond remedy.




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